Tuesday, March 9, 2010


Post from Carepages March 4, 2010
(Written by Jordyn's mother, Tracey)


Day +63

Wow...I didn't realize it has been quite a while since my last update and I apologize. They have kept us very busy which is a good thing for time to pass us by. On my last post I mentioned that Jordyn had gone back into the hospital but she was blessed and able to be discharged on Valentines Day. We enjoyed being eachothers Valentine and I even made her favorite meal for the two of us....chicken on the bone!! ha ha

Since being back on the outpatient side of things we have been busy shuttling back and forth from Target House to Hospital up until last week. Jordyn came down with yet another little virus that has landed her into isolation. The good thing is that we were able to stay out of the hospital but the down side is that we did have to leave the Target House and be put into an isolation room at the Grizzly House right on campus. We decided we do not enjoy isolation much at all! She is not allowed on shuttles, which is good for me...get exercise and have to hoof it around campus, nor is she allowed anywhere in the hospital. To get in we have our very own entrance, which I told her is because she is a celebrity and we have to sneak in. Upon entering we have to gown and glove up and then be escorted right into an isolation room at hospital. Crazy but a safe and good procedure to protect the other children. We are in hopes of coming out of isolation by next week. Other than that she was having severe headaches the past few weeks. She had a few extra tests...MRI, MRA, Lumbar Puntures, and eye doc appointments. All have confirmed that she had a some extra fluid in her spinal column, behind her eyes, and in her brain cavity. She has been put on medication to drain the swelling which has worked great and alleviated the pain she was having. The downside is we do not know what is causing the swelling as of yet. We had our MRA today so hopefully we will be able to get to the bottom of it soon.

By the grace of God her blood work continues to be 100% donor cells. We have been celebrating her 9th birthday for the past couple weeks even though on a normal basis one would celebrate in only one day! Not Jordyn!! We do have to thank all of you for all your wonderful birthday wishes and a slew of cards! She loved them for sure!! For me..I give special thanks every night to God for giving me the miracle to be able to celebrate my daughters 9th birthday. Children are a gift and forever will I give thanks to Him for my blessings!

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