Tuesday, May 11, 2010
Post from Carepages, May 7, 2010
(Written by Jordyn's mother, Tracey)
Home Sweet Home
Jordyn is finally "Home Sweet Home!" Wow....time flies! We have been home...back to St Jude this week....and just got home again last evening. I apologize for not posting sooner but as you can imagine we have just been enjoying our surroundings here at home with our family. We did not post or publish our return as Jordyn and I just wanted to make a quiet entrance home with our immediate family since it had been so long since seeing them all. What a 'Sweet' day it was!
Jordyn is doing so well with her recovery process.....I couldn't ask for anything more. To have a doctor look you in the eye and say "what a miracle she is" is an out of this world undescribable feeling!
Lots of recovery still to be had but with the determination & strength Jordyn has shown us, it gives us the hope to look at it all with positive thoughts, energy and faith stronger than ever!
Jordyn and I will be having to return to St Jude every other week which will keep life still hectic and crazy busy. We will be home one week and in Tennessee one week. But no complaints here because WE ARE HOME SWEET HOME in between!! Life is Good!!
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I am hoping someone is still "monitoring" this blog. I want Jordyn's family to know that I attended her bone marrow drive at Screamer's Cafe back in 2006. I have been on the National Donor list ever since. I was recently contacted because I am a match for someone else. Jordyn's unfortunate illness is potentially helping another's. I really hope Jordyn is well!
ReplyDeleteThat's great news! So wonderful that you may be able to help another person. I forwarded the message to Jordyn's mom.
ReplyDeleteOn a day where our family needed hope.... we were lead to an article about Jordyn.
ReplyDeleteOur 11 year old daughter, Sarah, is an ALL patient that has relapsed and our doctors at CHOP had given up hope.... and then we found St. Judes.
Sarahs protocol is NK cell expansion.... and she will receive her NK cells tomorrow 8/3/2011.
I would truly appreciate hearing from Jordyns mom or dad.... as my wife is having a very difficult day... and I believe our good lord lead us to your blog.
I can be reached at 267-249-9715 or pulaski@comcast.net
May god bless you and your family....
Mike Pulaski
I've come to check in a couple times over the last year or so and didn't find any updates. Today I tried to dig a little deeper and found out that Jordyn was the little girl who made me cry in last year's St. Jude holiday commercial. I'd never put two and two together, but I am glad to learn this good news. God bless you all and Merry Christmas!
ReplyDeleteHello, your story caught my attention today. I saw the interview you did with Denise Torres. We are friends for college. Your story struck home with me because we were at St Jude's with our daughter in summer of 2010. She had a rare form of leukemia discovered at St Jude's in 2009. Even though our daughter was diagnosed in 2008 or drs didn't realize she had it. Drs at st Jude's were the ones that told us. Her only hope was a bone marrow transplant, and that was only if she got to remission. I was wondering which type of leukemia your daughter had specifically? We were offered the same treatment as your daughter.
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